YannisTevissen/open-sma-data-catalog
Open SMA Data Catalog This catalogue describes seven spinal muscular atrophy (SMA) research resources spanning movement, electrophysiology, biomarkers, RNA sequencing, clinical registries, and digital measures. Each row records the modality, cohort scope, access level, licence or terms, source identifier, repository contents, and important limitations. Public files are available in their modality-specific repositories with checksums and citations. Controlled-access records… See the full description on the dataset page: https://huggingface.co/datasets/YannisTevissen/open-sma-data-catalog.
Open SMA Data Catalog
This catalogue describes seven spinal muscular atrophy (SMA) research resources spanning movement, electrophysiology, biomarkers, RNA sequencing, clinical registries, and digital measures.
Each row records the modality, cohort scope, access level, licence or terms, source identifier, repository contents, and important limitations. Public files are available in their modality-specific repositories with checksums and citations. Controlled-access records describe the application route; they do not contain participant data.
What the access labels mean
open_download: participant- or experiment-level files can be downloaded under a stated licence.open_reported_results: the public package contains reported tables or figure data, not a clean participant matrix.controlled_application: researchers must submit an enquiry or proposal.sponsor_controlled: a study describes participant-level streams, but no public download was identified.
Scope and safety
This is a research-data catalogue, not a clinical dataset or medical device. Consult each source's terms and study documentation before reuse.
Citation
Cite each underlying source directly. If you use this catalogue itself, cite the Hugging Face repository and the version/commit you used.